Thursday, October 14, 2010

AN, BN, EDNOS follow up

So i was going to just write a comment on my last post, but I had too much to say to all of your wonderful feedback, so I thought i'd just respond here. Thank you guys so much for sharing your experiences/thoughts with me on that topic. I feel that in order for the eating disorder field/sphere to really be helpful and effective, it also needs to be truly authentic, because, if eating disorders can be said to be "about" anything they are about non- authenticity and secrets and hiding your true self/feelings, so this is something that I feel must be avoided in the realm of supporting recovery.  
Many of you seemed to really understand where I was coming from in my last post on the stigmatization and shame that often comes with an eating disorder when one is not, at the moment, classifiably an underweight, restricting-type anorexic. Some of you brought up great points about how having a diagnosis of ED-NOS can often be very difficult and shameful, as if you are just "not severe enough" to qualify for the title of "anorexia nervosa" or whatever. The wonderful Tat also mentioned the hardship that comes with being a weight -restored, or even just not skeletal looking person with anorexia. This is so true. We all need to understand and have compassion for each other and fight for the respect of everyone, no matter what they weigh at the moment, and recognize that we all suffer, regardless of what our BMI might be. 
Really guys, thank you so much. I really am interested in this and am looking into doing some more ED advocacy work other than just blogging and this is a great starting point because it is one of the many things that I want to change about this field, so that recovery can be easier for all of the sufferers of this disease.
On that note I thought i'd post this link, because I think it's relevant. 
Let's not even mention the fact that my insurance company was just bought out by Blue Cross Blue Shield, and so now my family and I are trying to figure out the logistics of all the new expenses that are no longer being covered...
It makes me sad to see yet another girl who can't get the treatment she needs. But I also wanted to post the link because it is actually one of the least offensive news coverings of someone with an eating disorder that I have ever seen.
Maybe there is hope?...
But that brings me to the comments on this article. Which Carrie addressed in a blog post that i will also link you to, because it pretty much covers everything I wanted to say and then some. 
Anyway, can't you tell that it's a Thursday? I hardly have enough energy to keep my eyes open to look at the screen.
There will be more interesting things going on in my brain to share with you all once I actually get some sleep.
Until then, you guys rock.


  1. thank you for your support :) i really do appreciate it :)

  2. At the NEDA conf. last week they said that the mortality rate for EDNOS is HIGHER than that of ANA or BUL. Of course when a person with ANA is weight restored do they then become EDNOS?

    Anyway the point is ED's, in my mind, have very little to do with how much you weight. The media loves showing a skeletal figure or super morbidly obese person, both are the extremes and most people look much more normal than that. You can't judge a persons health by their looks.

  3. You have a brilliant mind and many valuable thoughts, Rose! I also read Carrie's post on insurance, and still can't get over it.

    At the time I went IP, I was still on my dad's insurance. They didn't pay much, but I was fortunate that they paid even a little. However, now that I'm getting insurance on my own... everyone is denying me coverage since I was in IP at one point.

    I'm stressed and frustrated... the world's perception of eds is absolutely maddening.

  4. It's really great to see someone be so pro-active. Having voicing such passion on an online public blog can, and will, make a difference. I think in order for our societies to really improve on how they deal with eating disorders, they need to realize that what you see on the outside rarely reflects what is going on on the inside. Perhaps the fatality rate wouldn't be so high if people recognized the severity of the struggles that are going on inside the minds of people who are at seemingly-healthy weights.

    Now.. get some sleep girl!
    <3 Tat

  5. thank you for your support :) i really do appreciate it :)